Showing titles in People with Disabilities

It all started out pretty normal: Paige lived in the countryside with her parents and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer 'why?' in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control. But Paige was normal. She was popular and well-liked. And until she had a full mental breakdown, no one believed her when she claimed that she was not okay.

When someone would tap along and rescue me from being sandwiched between these two hardbacks, sorry, did I frighten you? You never heard or seen a talking book. Well, me either. The majority of the time, I am the only one in the room, or shall I say, “on the shelf”? So many humans walk right past me, playing blind games by pretending not to see that the struggle is real. Talk about the lack of accessibility.

When fourth grader Alex Schwartz first met his cello, his eyes lit up with wonder, and a smile appeared on his face as bright as the potential his new cello teacher saw within him. The cello positively impacted all aspects of his development, including focus, fine motor, and gross motor skills.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

Living in the Belgian Congo with her husband in the 1960s, Fran’s mother became pregnant with a daughter. However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy. Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in.

This is a story in Victorian England of how in 1884 Frederick Treves, Surgeon and Lecturer in Anatomy at the London Hospital arranged for the "Elephant Man" (whose distorted grotesque face and deformed body made him a "freak") to visit the medical college next to the hospital for the purpose of a lecture. They would later become friends and Treves the savior of the man named John Merrick. This is Treves' memoir.

Carla Sosenko was born with Klippel-Trenaunay Syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back,­­ a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

Shot point-blank in the side of the neck, Michael Kiel was completely paralyzed from the neck down on April 16, 1993. As a 19-year-old sophomore at Penn State - Altoona campus, the world he knew vanished. It was turned upside down and inside out, and the next four months in the hospital and rehab center would test every fiber of his being. This memoir is about his perspective on life - his entire life - before, during, and after a life-altering spinal cord injury.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

I am not trying to be a role model, just a possibility. There are obstacles, and people may not always treat you properly, but there is progress. My story is one of many that doesn't choose death over paralysis. It's just a story that doesn't get told often enough.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.

Inside My Outside: An Independent Mind in a Dependent Body provides an in-depth look into the life of a young woman with cerebral palsy who cannot walk or talk but who uses an electronic device for communication. This memoir covers three full days, from morning to night, in Sara Pyszka’s life, providing glimpses of past relationships, friendships, schooling, and outrageous stories about the challenges of hiring, firing, and working with personal care assistants.

Unblinded is the true story of New Yorker Kevin Coughlin, who became blind at age 36 due to a rare genetic disorder known as Leber's hereditary optic neuropathy. Twenty years later, without medical intervention, Kevin's sight miraculously started to return. He is the only known person in the world who has experienced a spontaneous, non-medically assisted regeneration of the optic nerve. Unblinded follows Kevin's descent into darkness and his unexplained reemergence to sight.

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

Through the intimate writing of critically acclaimed autistic author Kay Kerr, Love & Autism presents an uplifting celebration of neurodivergent love, the search for it and a deeper look into the lives of autistic Australians.

At 35, the same age as his mother when she had her accident, Mitch began experiencing symptoms of primary progressive multiple sclerosis, a particularly disabling form of MS, and his physical challenges grew to resemble his mother’s. In the ensuing years, he muddled through the ethical swampland of clinical trials, navigated the minefield of experimental treatments, and became a popular blogger and disability advocate. Equal parts entertaining and inspiring, Enjoying the Ride tells an extraordinary mother and son story.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

How a mechanic rose above poverty and chronic anxiety to build a national enterprise and found peace with himself and his past in the process. Prepare to embark on a journey of emotions. This must-listen memoir explores the resilience of the human spirit. I literally could not stop reading From Turmoil to Triumph.

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed 40 percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.