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Understanding Ehlers-Danlos Syndrome: Insights from Jeannie Di Bon

In this episode, a special guest, Jeannie Di Bon, a movement therapist who specializes in hypermobility, Ehlers-Danlos Syndrome (EDS), and chronic pain, shares her expertise and personal journey. Diagnosed with EDS, Mast Cell Activation Syndrome, POTS, and chronic fatigue syndrome, Jeannie discusses the challenges of diagnosing these conditions, the significance of diagnosis for patients, and her development of a supportive online community and tools via the Zebra Club. She also addresses the complexities of EDS, similar conditions, and the importance of clinician awareness.

00:00 Welcome to the Podcast: Introducing Jeannie Di Bon
01:15 Understanding Ehlers Danlos and Hypermobility
03:26 The Challenge of Diagnosis and Misdiagnosis
09:59 Jeannie's Personal Journey with EDS
14:13 From Chronic Pain to Movement Therapy: Jeannie's Professional Evolution
22:14 Expanding Access: The Zebra Club and Online Resources
24:58 Addressing Comorbidities: ADHD, Autism, and Hypermobility
26:51 Final Thoughts: Hope, Support, and Education

Support the Show.

A Fibromyalgia Starter Pack, which is a great companion to the book Conquering Your Fibromyalgia, is now available. Dr. Michael Lenz practices general pediatrics and internal medicine primary care, seeing patients from infants through adults. In addition, he also will see patients with fibromyalgia and related problems and patients interested in lifestyle medicine and clinical lipidology. To learn more, go to ConquringYourFibromyalgia.com. Remember that while Dr. Lenz is a medical doctor, he is not your doctor. All of your signs and symptoms should be discussed with your own physician. He aims to weave the best of conventional medicine with lifestyle medicine to help people with chronic health conditions live their best lives possible. Dr. Lenz hopes that the podcast, book, blog, and website serve as a trusted resource and starting point on your journey of learning to live better with fibromyalgia and related illnesses.