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Understanding Ehlers-Danlos Syndrome: Insights from Jeannie Di Bon

In this episode, a special guest, Jeannie Di Bon, a movement therapist who specializes in hypermobility, Ehlers-Danlos Syndrome (EDS), and chronic pain, shares her expertise and personal journey. Diagnosed with EDS, Mast Cell Activation Syndrome, POTS, and chronic fatigue syndrome, Jeannie discusses the challenges of diagnosing these conditions, the significance of diagnosis for patients, and her development of a supportive online community and tools via the Zebra Club. She also addresses the complexities of EDS, similar conditions, and the importance of clinician awareness.

00:00 Welcome to the Podcast: Introducing Jeannie Di Bon
01:15 Understanding Ehlers Danlos and Hypermobility
03:26 The Challenge of Diagnosis and Misdiagnosis
09:59 Jeannie's Personal Journey with EDS
14:13 From Chronic Pain to Movement Therapy: Jeannie's Professional Evolution
22:14 Expanding Access: The Zebra Club and Online Resources
24:58 Addressing Comorbidities: ADHD, Autism, and Hypermobility
26:51 Final Thoughts: Hope, Support, and Education

Support the Show.

A Fibromyalgia Starter Pack, which is a great companion to the book Conquering Your Fibromyalgia, is now available. Dr. Michael Lenz practices general pediatrics and internal medicine primary care, seeing patients from infants through adults. In addition, he also will see patients with fibromyalgia and related problems and patients interested in lifestyle medicine and clinical lipidology. To learn more, go to ConquringYourFibromyalgia.com. Remember that while Dr. Lenz is a medical doctor, he is not your doctor. All of your signs and symptoms should be discussed with your own physician. He aims to weave the best of conventional medicine with lifestyle medicine to help people with chronic health conditions live their best lives possible. Dr. Lenz hopes that the podcast, book, blog, and website serve as a trusted resource and starting point on your journey of learning to live better with fibromyalgia and related illnesses.

Text Dr. Lenz any feedback or questions

This episode delves into the complexities and profound impacts of ADHD, particularly in women, extending to discussions on autism's role in those also living with ADHD and chronic pain. Dr. Ellen Littman emphasizes the under-recognition and training regarding autistic spectrum behaviors in women and girls. They discuss how these conditions exacerbate difficulties in social interactions, increase susceptibility to environmental impacts like allergies or asthma, and contribute to emotional dysregulation. The session also touches on notable individuals like Elon Musk, illustrating how ADHD and autism can coexist with success. The episode aims to destigmatize ADHD and autism, highlighting the neurodivergent spectrum and emphasizing strength-based perspectives in diagnosis and treatment.

00:00 Exploring ADHD and Women: Profound Impacts and Overlaps with Autism
00:59 Introduction : Insights on ADHD, Autism, and Chronic Pain
01:28 Understanding Autism in Women and Girls: A New Perspective
07:43 The Complex Interplay of ADHD, Autism, and Emotional Dysregulation
09:50 Elon Musk: A Case Study in ADHD, Autism, and Emotional Challenges
12:33 Depathologizing ADHD: A Shift Towards Understanding and Acceptance
16:14 The Journey of Advocacy and Education in ADHD and Autism
22:47 Concluding Thoughts: The Importance of Holistic Approaches and Community Support

Support the Show.

A Fibromyalgia Starter Pack, which is a great companion to the book Conquering Your Fibromyalgia, is now available. Dr. Michael Lenz practices general pediatrics and internal medicine primary care, seeing patients from infants through adults. In addition, he also will see patients with fibromyalgia and related problems and patients interested in lifestyle medicine and clinical lipidology. To learn more, go to ConquringYourFibromyalgia.com. Remember that while Dr. Lenz is a medical doctor, he is not your doctor. All of your signs and symptoms should be discussed with your own physician. He aims to weave the best of conventional medicine with lifestyle medicine to help people with chronic health conditions live their best lives possible. Dr. Lenz hopes that the podcast, book, blog, and website serve as a trusted resource and starting point on your journey of learning to live better with fibromyalgia and related illnesses.

Text Dr. Lenz any feedback or questions

Understanding ADHD in Women: Insights from Experts

This episode delves into the complex recognition and treatment of ADHD in girls and women. It features discussions from a recent American Professional Society for ADHD and Related Disorders conference, emphasizing the stigmatization and challenges in diagnosing ADHD in female patients. The episode explores the interplay between ADHD and conditions like chronic pain, chronic fatigue syndrome, fibromyalgia, and the impact of hormonal fluctuations on ADHD symptoms. Guest expert Dr. Littman shares insights on the high correlation between ADHD and negative outcomes such as suicidality, self-harm, early mortality, eating disorders, and overall lower quality of life in women. She also shares the connection between ADHD and abortion. It also covers the misdiagnosis and misunderstanding of ADHD in women, stressing the importance of awareness and tailored treatment to improve life quality.

00:00 Opening Remarks a
00:12 Exploring ADHD: Insights from the XR Conference
01:01 Introduction and Mission
01:28 ADHD Recognition and Misdiagnosis: A Deep Dive
05:19 The Impact of Hormones on ADHD and Pain
09:27 Addressing ADHD: Personal Stories and Clinical Insights
22:17 The Importance of Support and Understanding ADHD
27:14 Conclusion

Support the Show.

A Fibromyalgia Starter Pack, which is a great companion to the book Conquering Your Fibromyalgia, is now available. Dr. Michael Lenz practices general pediatrics and internal medicine primary care, seeing patients from infants through adults. In addition, he also will see patients with fibromyalgia and related problems and patients interested in lifestyle medicine and clinical lipidology. To learn more, go to ConquringYourFibromyalgia.com. Remember that while Dr. Lenz is a medical doctor, he is not your doctor. All of your signs and symptoms should be discussed with your own physician. He aims to weave the best of conventional medicine with lifestyle medicine to help people with chronic health conditions live their best lives possible. Dr. Lenz hopes that the podcast, book, blog, and website serve as a trusted resource and starting point on your journey of learning to live better with fibromyalgia and related illnesses.