• S7, Ep 21- Special Episode: The Power of Patient Stories

  • Aug 13 2024
  • Length: 32 mins
  • Podcast

S7, Ep 21- Special Episode: The Power of Patient Stories

  • Summary

  • Welcome to our special episode of The Health Advocates hosted by our 50-State Network and the Obesity Action Coalition (OAC). This episode features advocates Jody Quinn, Judy Nagy, Yolanda Clay, and Alecia Smith, who share their personal journeys — how they began sharing their stories, the invaluable support of community, the challenges they faced, and their successes along the way. You'll also hear their advice for others looking to make a difference.

    Among the highlights in this episode:

    01:17 - Judy recounts how being diagnosed with rheumatoid arthritis led her to advocacy and her extensive involvement with legislative support

    02:12 - Jody describes her late diagnosis of psoriatic disease and her initial reluctance turned commitment to advocacy

    03:14 - Alicia talks about her journey from seeking support for obesity to becoming a prominent advocate through the OAC

    04:10 - Yolanda discusses her personal experiences with chronic obesity and how overcoming internal barriers propelled her into advocacy

    05:22: Kendall prompts a discussion on how to get started in advocacy, with personal insights from each guest

    07:00: Our guests discuss the importance of connecting with patient groups and finding communities that provide training and support for new advocates

    08:56 - Alicia emphasizes the role of genuine passion in making an impact and connecting with others through advocacy

    13:20 - Alicia reflects on her initial fears and how understanding the impact of personal stories helped her gain confidence in advocacy settings

    16:36 - Judy emphasizes the critical role of fellowship and mentorship in navigating the complexities of advocacy and building resilience

    20:25 - Jody highlights how mentors have supported her through her advocacy journey, sharing their knowledge and boosting her confidence in various advocacy activities

    23:34 - Yolanda discusses her ongoing efforts to manage expectations and maintain motivation despite the slow pace of change in advocacy work

    26:20 - Judy reflects on the need for patience in advocacy, sharing her long-term experience with legislative processes and the eventual rewards of persistent advocacy efforts

    28:05 - Each guest offers their advice to those considering advocacy, emphasizing the importance of community, mentorship, and personal growth

    Contact Our Hosts

    Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

    Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org

    Special Episode Co-Hosts

    Kendall Griffey, Communications Manager at OAC

    Erik Stone, Associate Director, Learning Experience Design at GHLF

    A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

    We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

    Catch up on all our episodes on our website or on your favorite podcast channel.

    See omnystudio.com/listener for privacy information.

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