In this episode of the Well Nurtured Brain we are joined by Aaron Jones to discuss the intricate world of chronic pain, exploring how it affects every facet of life—from physical limitations to emotional resilience. We take a closer look at the often-overlooked connection between chronic pain and sleep disruptions, shedding light on the challenges of getting restorative rest when pain feels relentless. Our discussion also features a deep dive into Ehlers-Danlos Syndrome (EDS), a complex and often misunderstood condition that adds unique layers to the experience of chronic pain. Aaron is a physiotherapist working in Victoria BC with a special interest in EDS. With insights including personal stories, and practical strategies, this conversation aims to educate, validate, and empower listeners navigating these challenges. Whether you’re living with chronic pain, supporting someone who is, or simply curious about the science and lived experience of these conditions, this episode offers a compassionate and insightful perspective. Join us as we unpack the realities, break down the myths, and explore pathways to hope and healing. Connect with Aaron Jones: Aaron earned a Master Degree in Physiotherapy from the University of Sydney, Australia. Prior to that, he graduated with a Bachelor degree in Exercise Science and Rehabilitation from the University of Wollongong, Australia. Aaron has been a registered practicing physiotherapist throughout Australia, in New York City and right here in British Columbia. Aaron is passionate about musculoskeletal physiotherapy with a special focus in chronic pain, Ehlers-Danlos Syndrome, Fibromyalgia and Functional Neurological Disorder. You can find Aaron at Acacia Health in Victoria BC Acacia Health Website Articles written by Aaron Jones Connect with me: Pamela's Instagram: https://www.instagram.com/dr_pamela_hutchison_nd The Well Nurtured Brain's Instagram: @the_well_nurtured_brain Facebook: https://www.facebook.com/profile.php?id=100089475401521&mibextid=LQQJ4d Website: www.TheWellNuturedBrain.com Email: thewellnurturedbrain@gmail.com Resources: Kent, P., Haines, T., O'Sullivan, P., Smith, A., Campbell, A., Schutze, R., Attwell, S., Caneiro, J. P., Laird, R., O'Sullivan, K., McGregor, A., Hartvigsen, J., Lee, D. A., Vickery, A., Hancock, M., & RESTORE trial team (2023). Cognitive functional therapy with or without movement sensor biofeedback versus usual care for chronic, disabling low back pain (RESTORE): a randomised, controlled, three-arm, parallel group, phase 3, clinical trial. Lancet (London, England), 401(10391), 1866–1877. https://doi.org/10.1016/S0140-6736(23)00441-5 Oslo Chronic Fatigue Consortium, Alme, T. N., Andreasson, A., Asprusten, T. T., Bakken, A. K., Beadsworth, M. B., Boye, B., Brodal, P. A., Brodwall, E. M., Brurberg, K. G., Bugge, I., Chalder, T., Due, R., Eriksen, H. R., Fink, P. K., Flottorp, S. A., Fors, E. A., Jensen, B. F., Fundingsrud, H. P., Garner, P., … Wyller, V. B. B. (2023). Chronic fatigue syndromes: real illnesses that people can recover from. Scandinavian journal of primary health care, 41(4), 372–376. https://doi.org/10.1080/02813432.2023.2235609 Kourbanova, K., Alexandre, C., & Latremoliere, A. (2022). Effect of sleep loss on pain-New conceptual and mechanistic avenues. Frontiers in neuroscience, 16, 1009902. https://doi.org/10.3389/fnins.2022.1009902 https://www.ehlers-danlos.com/what-is-eds/ https://www.thelancet.com/series/low-back-pain https://potsfoundation.org.au/dr-andrew-maxwell-keynote-speaker-pots-unmasked-2022/ Dr. Pradeep Chopra: Connecting Dots in EDS: https://www.youtube.com/watch?v=zd1K2EL9VjI https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4681035/ https://www.ncbi.nlm.nih.gov/books/NBK553027/ https://www.thespidertool.com/ https://www.ehlers-danlos.com/research-update-the-spider-a-multisystemic-symptom-impact-tool-for-people-with-hypermobility-related-disorders-initial-validation-in-adolescents/ 2023 Chronic Pain and Fatigue - Dr. Helen Cohen: https://www.youtube.com/watch?v=1NjE_X46hkY https://karger.com/pps/article/90/1/11/294736 https://drricarseneau.ca/videos The Role and Treatment of Autonomic Dysfunction in EDS-Associated Sleep Disorders - Dr. Alan Pocinki https://www.youtube.com/watch?v=9qwORNmMUks Loved this episode? Leave us a review and rating!
