Gut Punched: Alzheimer’s & Caregivers

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  • Resumen

  • Navigating the insidious illness of Alzheimer’s is something nobody asks for. The disease sneaks up on you and your loved one, and it feels like you’ve been sucker-punched in the gut when you get the diagnosis from a doctor. So many things race through your mind: why us? What do we do? We worked so hard to get to this point in life. We just moved here after we both worked for 30 years, sold our house up North, and retired to Florida to enjoy our “golden years”. It’s not fair! Who’s going to take care of her/him? I don’t know a thing about this illness. She’s always done the cooking; I don’t even know how to boil water. He's always taken care of me and everything else like Finances. I don’t even drive! And it goes on and on. Facing this disease will bring you to your knees. Once you get over the initial shock (GUT PUNCHED), the questions and fears take hold. Where do we turn for help? Who do I call? What do I do? How do you take care of someone with Alzheimer's? Are there support groups? And questions like these just keep coming. I am a caregiver. I wasn’t before. Well, not this kind of caregiver. My wife was officially diagnosed in January of 2018. I had a sneaking suspicion that she might have something like this about 2 years earlier. So, when I brought it to my Neurologist, he sent us to a very nice Psychologist who specializes in testing patients to determine more accurately what is going on. It was a question-and-answer session, followed by a very detailed testing procedure that usually takes 3 or more hours. The patient has to complete the test comprising of questions, simple actions, and memory tests, then give them a couple of numbers or words then move on, going back to the numbers or words a short time later.

    So moving forward, I asked all the same questions as mentioned earlier. What are my options? So I “sucked it up”-Manned up so to speak. It's part of the deal for better or worse, right? So began my quest for information on support groups, doctors, anything I could get my hands on. It's been 6 years, and I am still looking for everything and anything that will help me crawl through this unchartered path to enlightenment. I was very fortunate to live in a city that has numerous resources to tap into. Most importantly, it's a place named after someone who suffered from Alzheimer’s. His wife provided the money to start the Alvin Dubin Center: The Dubin Center for short. Their mission is to achieve caregiver health, strength, and resilience by providing education, information, hope, and compassion. And boy do they. I leaned on them for everything I could find. Took all kinds of classes to learn what I needed to do to be the caregiver I have to be. Their caregiver class took about 6 weeks. The material we learned from, and the instructors, were top-notch. I still go back to the notes I took, and the books we used: both as refreshers and inspiration. Hopefully, no matter where you are listening to this, there will be a place like the Dubin Center. If not, don’t despair. The info is out there. That’s what this podcast is about. We’d like to share our resources, our experiences, our heartbreak, and our little victories. From time to time, we’d like to bring in Physicians, Nurses, Experts, and people like you and me, who are going through this disease with our loved ones who are willing to share their journey. The first thing that really stuck with me, and hopefully it will be with you. If you are a caregiver, you must first take care of yourself. Because this is not a sprint, but a marathon. And if you are run down, get sick, or worse.... Who’s going to take care of your spouse, mother, father, or child? Think about that for a few seconds. It’s you, the Caregiver. It’s me the Caregiver. That’s why we’re here. Gut Punched: Alzheimer’s & Caregivers! Thanks for joining us...now let's get going.

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Episodios
  • Gut Punched: Alzheimer’s and Caregivers EP 47 I Love Music
    Mar 17 2025

    In this heartfelt episode of GutPunched: Alzheimer’s and Caregivers, host Jeff Edwards reflects on the power of music and its profound impact on those living with Alzheimer's and dementia. As spring approaches and daylight savings time begins, Jeff humorously shares his personal experience of missing the time change this year, only to wake up refreshed, realizing he didn't lose that precious hour of sleep after all.

    Music takes center stage in this episode, as Jeff explores an article discussing how music can soothe depression in dementia patients. He delves into the positive effects that music has on individuals with Alzheimer's disease, offering hope and healing through the power of melody and rhythm. One particularly moving story featured is that of Henry Dyers, a 90-something Alzheimer’s patient who finds joy and connection through the music of Cab Calloway. This story is showcased in the touching video Alive Inside, which Jeff encourages listeners to watch for a heartwarming experience.

    In addition, the episode features a conversation with Molly Phillips, a musician, music educator, and board-certified music therapist. Molly leads The Intermezzo Choir, a group created specifically for individuals with Alzheimer’s and dementia by the Fort Myers Symphonic Masters Singers. She shares insights into the therapeutic power of music and its ability to engage and uplift patients in profound ways.

    As the episode draws to a close, Jeff reflects on the first anniversary of GutPunched: Alzheimer’s and Caregivers, acknowledging the incredible journey of sharing valuable resources and information with listeners and caregivers. Tune in for this moving, music-filled episode that highlights the transformative power of music for those affected by Alzheimer's and dementia.

    Available on GUTPUNCHED.COM, The Podcast Playground, and all major platforms including Spotify, Pandora, Google, iHeart, Apple, and more. Don't forget to like and subscribe!

    #GUTPUNCHED #ALZHEIMERS #DEMENTIA #CAREGIVERS

    Gut Punched: Alzheimer’s and Caregivers

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    32 m
  • Gut Punched: Alzheimer’s and Caregivers EP 46
    Mar 10 2025

    In this episode of GUTPUNCHED, host Jeff Edwards reflects on a meaningful week, having spoken at an Alzheimer’s Association dinner where he met dedicated individuals working to raise funds for crucial research and resources. He highlights the importance of these efforts in supporting those affected by the disease.

    Jeff also shares a personal experience—taking a cognitive test. While initially nervous, he was pleased with his performance and uses this moment to stress the importance of early cognitive screening, particularly for those 50 and older. Establishing a baseline now, he explains, can be essential for future comparisons.

    The episode then dives into two intriguing topics:

    1. Could Ozempic Lower Alzheimer’s Risk in Diabetes Patients? – A look at recent research exploring whether this popular diabetes medication might have protective cognitive benefits.

    2. Delayed Dream Sleep as an Early Alzheimer’s Indicator – Discussing findings that suggest disruptions in REM sleep could be an early warning sign of Alzheimer’s.

    Finally, Jeff continues his insightful interview with the owner of Heart, Body & Mind Home Care, an award-winning home care company recognized for setting a high standard in the industry. This segment provides a deeper look into how innovative home care services are improving the lives of patients and caregivers alike.

    A compelling episode filled with personal reflections, emerging research, and expert insights—one not to miss!

    Available on GUTPUNCHED.COM, The Podcast Playground, and all major platforms including Spotify, Pandora, Google, iHeart, Apple, and more. Don't forget to like and subscribe!

    #GUTPUNCHED #ALZHEIMERS #DEMENTIA #CAREGIVERS

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    30 m
  • Gut Punched: Alzheimer’s and Caregivers EP 45
    Mar 3 2025

    In this episode of GutPunched, hosted by Jeff Edwards, we kick off March with a healthy dose of reality. After surviving Groundhog Day (and wondering if the little guy got it right), Jeff shares highlights from an eye-opening seminar on Alzheimer's and Dementia. Not only did Jeff meet a pair of doctors who are multi book authors, but he also took away enough valuable information to start contemplating a cognitive test of his own—because, hey, when you hit 50, it’s time to start paying attention to those little memory lapses... if you can remember why.

    The episode dives into a key topic: "Alzheimer’s in Mother Means Higher Inheritance Risk," examining how the disease affects families, and what that means for the future. To bring practical insight to the conversation, Jeff also sits down with the owner of Heart, Body & Mind Home Care—an award-winning, top-tier care service specializing in dementia and Parkinson's care. Their certified trainers have set the bar high for in-home care, and you won’t want to miss their tips on navigating the challenging terrain of caregiving.

    Jeff shares some essential GutPunched Rules for caregivers:

    Take care of yourself – Because if something happens to you, who’s going to take care of your loved one?

    You can’t do it alone – Find your tribe of support, whether it’s caregiver groups, friends, or family.

    Make lists – When caregiving duties pile up, write down who’s offered help and what needs to get done. Prioritize, delegate, and get things done. Trust us, it works!

    This episode brings a mix of wit, wisdom, and real-life advice, all wrapped up in Jeff's signature, no-nonsense style. If you’re a caregiver or know someone who is, this is a must-listen!

    And as always—GutPunched keeps you thinking, laughing, and maybe even looking into a few cognitive tests for yourself.

    Available on GUTPUNCHED.COM, The Podcast Playground, and all major platforms including Spotify, Pandora, Google, iHeart, Apple, and more. Don't forget to like and subscribe!

    #GUTPUNCHED #ALZHEIMERS #DEMENTIA #CAREGIVERS

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    27 m

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