Intro

So you had the big bad thing happen... and now you have a brain injury. You’re in every form of rehab doing the work to build yourself. An often overlooked part of brain injury recovery is finding others who have been there. Connecting with those who have lived experience helps lessen the feelings of isolation that come when your brain is no longer your buddy. In this episode Maddi Niebanck and Tawnie Romero-Golic discuss the power connection has had in their recoveries. We all challenge you to reach out and find a brain injury buddy(ies). It could be the thing that makes the most difference in your mental health post injury!

Summary

Maddi and Tawny share their experiences as stroke survivors and advocates in the brain injury community. Maddi discusses her journey with an arteriovenous malformation (AVM) and the decision to undergo brain surgery. She shares the challenges she faced during her recovery, including paralysis and the need for extensive rehabilitation. Tawny emphasizes the importance of putting in the work and the power of community in the healing process. Both Maddi and Tawnie highlight the role of their Instagram Live show in connecting with other survivors and offering support and hope. Tawnie and Maddi discuss their motivations for advocacy and raising awareness about brain injuries. They emphasize the importance of connecting with others who have had similar experiences and the power of sharing stories. They also highlight the role of organizations like TAAF in providing resources and support. The conversation explores the transformative nature of advocacy and the need for community in the recovery process. Tawnie and Maddi provide their contact information for those seeking support and connection.

Keywords

stroke, brain injury, arteriovenous malformation, brain surgery, rehabilitation, paralysis, community, support, hope, advocacy, awareness, brain injury, community, support, resources

Takeaways

· The importance of seeking connection and learning from others who have had similar experiences

· The power of putting in the work and being proactive in one's recovery

· The role of community in providing support and hope

· The challenges and triumphs of navigating life after a stroke

· Advocacy is driven by the desire to prevent others from experiencing the same challenges and misdiagnoses

· Connecting with others who have had similar experiences can provide support and help in finding the right words to describe one's own journey

· Working with organizations like TAF can offer additional resources and support for brain injury survivors

· Sharing stories and experiences helps to combat the isolation and loneliness often associated with brain injuries

· Building a community of support and connection is crucial in the recovery process

Sound Bites

"I had an AVM rupture... I was very much against that."

"I'm not just gonna wake up one day and be better, which is what I was thinking. Like I am gonna have to put in the work."

"It was like seeking connection and learning from others who have had something similar go on."

"I want to raise awareness because I don't want anyone else to go misdiagnosed"

"We're not alone. That's the big learning, I think, from all of this”

"We're stronger together"

Chapters

00:00 Introduction and Background

05:14 Journey with Arteriovenous Malformation and Brain Surgery

11:28 Putting in the Work: The...