RARE MAMAS RISING- EPISODE 43

Growing Our Gratitude with Rare Mama Nikki McIntosh

This Thanksgiving, join us to explore the powerful impact gratitude can have on our rare journeys. We’ll dive into how simple acts of thanks can elevate our spirits, strengthen our health, and deepen our relationships with the incredible providers who support us every day. We’ll uncover the science behind gratitude’s high-vibrational energy and share practical ways to honor the people who make a difference in our lives. Tune in to celebrate the strength of our community and discover how we can grow our gratitude!

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

PODCAST INFO

podcast@raremamas.com

RARE MAMAS RISING- EPISODE 42

In this special Halloween episode of Rare Mamas Rising, we explore how to make Halloween fun, inclusive, and accessible for children with rare diseases. Nikki shares personal stories and practical tips, including creative trick-or-treating alternatives, sensory-friendly activities, and adaptive costume ideas. Whether your child uses a wheelchair, has sensory sensitivities, or faces other challenges, this episode offers ideas to help you celebrate the spooky season in a way that works for your family. Join us for insights, new traditions, and a little Halloween magic!

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

PODCAST INFO

podcast@raremamas.com

RARE MAMAS RISING- EPISODE 41

Loving with Every Breath with Breath Taking Author Jessica Fein

Jessica Fein is the author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes and host of the "I Don't Know How You Do It” podcast, which features people whose lives seem unimaginable and who triumph over seemingly impossible challenges. Her writing has appeared in Newsweek, Psychology Today, The Boston Globe, HuffPost, Scary Mommy, Zibby Mag, Kveller, and more. Jessica is a relentless warrior in memory of her dynamic daughter, whom she lost to the rare disease MERRF Syndrome in 2022. Her work encompasses hope and humor, grit and grace–the tools that make up her personal survival kit. Jessica serves on the Board of Directors of MitoAction. She’s the mother of three, whom she and her husband adopted from Guatemala. In this episode, Jessica shares her powerful journey with raw honesty, wisdom, and heart. Join us as we explore the intertwined emotions of joy and sorrow, love and loss, and uncover why Jessica’s new book is truly a love story and a moving testament to the enduring power of love.

EPISODE HIGHLIGHTS

• Background about Jessica and her family
• How, as a problem-solver by nature, Jessica dealt with an unsolvable situation
• The difference between living in fear and living with fear
• Nurturing the conflicting emotions of sorrow and joy
• Staying present while experiencing painful circumstances
• The journey to writing Breath Taking
• Why Breath Taking is described as a love story
• Jessica’s hopes for her book
• Jessica’s learnings and advice for other rare mamas

LINKS & RESOURCES MENTIONED

Jessica Fein

jessicafeinstories.com
https://www.instagram.com/feinjessica/

https://www.facebook.com/jessica.fein.92/

https://www.linkedin.com/in/jessica-fein-b643b09/

https://podcasts.apple.com/us/podcast/i-dont-know-how-you-do-it/id1668168226

Breath Taking

jessicafeinstories.com

https://www.goodreads.com/author/show/826590.Jessica_Fein

Mito Action

https://www.mitoaction.org

CONNECT WITH NIKKI

Website

https://raremamas.com/

Instagram

https://www.instagram.com/Rare_Mamas/

Email

info@raremamas.com

PODCAST INQUIRIES

podcast@raremamas.com