Rare Care Podcast

De: Rare Care Podcast
  • Resumen

  • Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
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Episodios
  • 166: An Interview With MDA 2025 Patient Ambassador Lily Sander
    Apr 15 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.

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    15 m
  • 165: An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa
    Apr 11 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system.

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    11 m
  • 164: An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD
    Apr 7 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Arash Mostaghimi, MD, an associate professor of dermatology and a practicing physician at Boston's Brigham and Women's Hospital. Dr. Mostaghimi is a recognized expert on generalized pustular psoriasis (GPP).

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    9 m
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