Raising the Extraordinary

By: Aimee Tilley
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  • Summary

  • Hi! welcome to my little corner of the world, my name is Aimee, I am a Mum of two, one of which has a diagnosis of CLN2 Batten Disease, with this comes epilepsy, severe learning difficulties and a whole host of other things. Day to day life can be exhausting, hard to navigate, lonely and heart breaking BUT I try to have a positive view on life, make happy memories with those that I love and care about.


    I want to use my experience of live so far (with a special needs child) to help others, bring a community of parents together and encourage others to live life as best they can. Through listening to me (and future guests) I hope you will learn, laugh and find enjoyment in your road ahead


    Over coming episodes I hope to educate, encourage, inspire, support, share and hold space for us all. I am on a learning journey which I'd like you will join me on too.


    A little more about me.

    I love: family, visiting the beach even though I don't like sand, woodland walks, listening to podcasts (favourites include Mel Robbins, Minimalish and Law of Attraction Saved My Life) decluttering and organising (other peoples homes - not my own!) and crocheting. I love to help people, take the kids swimming and horse riding and lastly I ADORE my loving husband.


    Whether you have a special needs child or not, I hope you'll join me over the coming episodes & help enable me to not only help others, but help me to find my own identity again as Mum navigating this journey I find myself on . Please SUBSCRIBE to get my podcast to others, Thank you!

    you can find me on Instagram @raising_the_extraordinary


    Hosted on Acast. See acast.com/privacy for more information.
    Aimee Tilley
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Episodes
  • Attending a children's Hospice

    Attending a children's Hospice
    Apr 6 2024

    Hi! Welcome to episode 5, I recorded this during our recent visit to Rainbows Hospice in Loughborough. I hope hearing our experience of visiting will help others that are unsure of what to expect when visiting a children's hospice for respite.


    Raising The Extraordinary - a podcast for parents and carers raising children with additional needs


    Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach the people who need and want to be a part of our community.

    I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch!

    PLEASE NOTE : DISCLAIMER I am not medically trained, always

    consult your child's health professionals before trying any therapies,

    exercises or tasks I talk about in ANY of my episodes.

    Please connect with me at

    www.instagram.com/raising_the_extraordinary


    Hosted on Acast. See acast.com/privacy for more information.
    Show more Show less
    21 mins
  • Life Lessons Since Diagnosis

    Life Lessons Since Diagnosis
    Mar 22 2024

    The last two years, life sure has taught me a few things! I have shared just a few here with you today in the hope to help others going through the same!


    Raising The Extraordinary - a podcast for parents and carers raising children with additional needs


    Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach the people who need and want to be a part of our community.

    I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch!

    PLEASE NOTE : DISCLAIMER I am not medically trained, always

    consult your child's health professionals before trying any therapies,

    exercises or tasks I talk about in ANY of my episodes.

    Please connect with me at

    www.instagram.com/raising_the_extraordinary




    Hosted on Acast. See acast.com/privacy for more information.
    Show more Show less
    22 mins
  • Coping with Guilt

    Coping with Guilt
    Mar 18 2024

    Raising The Extraordinary - a podcast for parents and carers raising children with additional needs


    TRIGGER WARNING. In this episode I briefly mention eating disorders/disordered eating.

    Do you struggle with Guilt? It is such a strong emotional that ruin an entire day right?

    As Isaacs Mum I feel such intense guilt over him having Batten Disease & everything that comes with that. I feel guilty for Eva’s childhood and it not being what I had hoped for.

    Our emotions play a huge part in how we cope with day to day life, join me today as I talk about the small things I do to stop the feelings of guilt taking over.


    Please SUBSCRIBE, REVIEW & SHARE to help my podcast reach

    the people who need and want to be a part of our community.

    I'd like to hear your ideas for future episodes, guests you'd like to hear from and your opinions on the show. Please get in touch!

    PLEASE NOTE : DISCLAIMER I am not medically trained, always

    consult your child's health professionals before trying any therapies,

    exercises or tasks I talk about in ANY of my episodes.

    Please connect with me at

    www.instagram.com/raising_the_extraordinary


    Hosted on Acast. See acast.com/privacy for more information.
    Show more Show less
    26 mins

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