• Navigating Rare: A Mother's Journey Through Jordan Syndrome

  • Dec 3 2024
  • Length: 27 mins
  • Podcast

Navigating Rare: A Mother's Journey Through Jordan Syndrome

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  • Summary

  • In this conversation, Michelle Fruhschien shares her journey as a mother and advocate for her daughter Haley, who has Jordan syndrome, a rare genetic condition. Michelle discusses the challenges of navigating the diagnosis, the importance of family support, and her advocacy work through her platform 'Mama Bear for Rare'. She emphasizes the need for true inclusion and understanding in society, and reflects on the emotional growth and resilience that comes from parenting a child with disabilities.
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