• Authentic Partnership
    May 28 2024

    In this episode, host Marianna Raia and guests Natasha Bonhomme and Molly Martzke explore the transformative impact of authentic partnerships in the genetic healthcare delivery system. By fostering genuine collaboration between families, healthcare providers, and communities, we can create more inclusive, effective, and patient-centered care. Join us to hear expert insights and success stories on how these partnerships are driving meaningful system change.











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    35 mins
  • Convening
    May 28 2024

    In this episode, host Natasha Bonhomme and guests Vicki Hunting and Marianna Raia discuss the power of convening and bringing diverse groups together to drive system change. By fostering collaboration and dialogue among stakeholders, we can create innovative solutions and build more resilient, inclusive systems. Join us as we explore inspiring examples of how collective action leads to meaningful, lasting change.

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    25 mins
  • Importance of the Lived Experience
    May 28 2024

    In this episode, host Bailey Perez and guests Molly Martzke and Marianna Raia highlight the crucial role of lived experiences and storytelling in driving system change. By sharing personal narratives, we can illuminate systemic issues and inspire actionable solutions. Join us as we delve into powerful stories that demonstrate how lived experiences can catalyze meaningful, lasting transformation.

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    27 mins
  • Data
    May 28 2024

    In this episode, host Vicki Hunting and guests Bailey Perez and Natasha Bonhomme explore the pivotal role of data and the importance of asking the right questions to drive system change. By leveraging accurate data and insightful inquiry, we can uncover root causes and design effective, sustainable solutions. Join us as we discuss how data-driven approaches are transforming systems and creating impactful change.

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    16 mins
  • Supporting Family Engagement
    May 28 2024

    In this episode, our host Molly Martzke and guests Bailey Perez and Vicki Hunting delve into the critical importance of family engagement in revolutionizing the genetic healthcare delivery system. We discuss how active family involvement can lead to more patient-centered, equitable, and effective healthcare practices. Tune in to hear expert insights and real-life examples of how supporting family engagement can drive significant and lasting system change in genetic healthcare.

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    20 mins
  • How Did We Get Here
    Oct 6 2022

    Join us as we wrap up season one. One of the most frequent questions that we are often asked is, how did you get into this field. We share how we get started and where we see ourselves going from here.

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    18 mins
  • Mentorship
    Oct 6 2022

    I'm so excited to have you along today for an important discussion. We will be discussing the value that mentors and leadership training played into what we are doing today. How this piece is crucial in the development of family leaders as they engage in systems change.

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    21 mins
  • Emotional Cost of Sharing Your Story
    Oct 6 2022

    Sharing stories is often one of the first things that families are asked to do. In today's episode we discuss how it makes you feel to share, very personal and sometimes very difficult stories. How when you are re-telling your story or hearing somebody's story, you're right back in that moment. How there's an emotional cost to that, but also there's power in that, too.

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    25 mins