Episodes

  • what's the what re STINK, friendsgiving, pumpkin prowl, gfm

    what's the what re STINK, friendsgiving, pumpkin prowl, gfm
    Nov 16 2024
    where I talk about what's going on with getting the stink sorted, trying to get next constituency appointment with my mla, some nice things like the pumpkin prowl and friendsgiving, how close I am to running out of GoFundMe money and how I'm feeling about Christmas and my birthday coming I can only put one photo as the icon which I chose to be the one that has the QR code that someone help me make, so I'm putting photos of things I'm talking about in the GoFundMe update. so just scroll down to the update to see photos, especially the state of my bathroom fan which gives you a sense of how much worse the ductwork must be and I believe you should be able to download the photo you see as the icon of this episode gfm https://gofund.me/cff39173 here's that study from Quebec about the 37% rate of long covid that they're finding in their medical providers after the third covid infection https://www.inspq.qc.ca/publications/3510
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    27 mins
  • nightmare wakes me

    nightmare wakes me
    Oct 29 2024
    Where the intensity of the abdication combines with the stink making me so extra sick and the Everest of difficulty of getting the system help me end up in my dreams creating a nightmare RICHOCHET (most recent article ) https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Gfm https://gofund.me/cff39173 #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #longviral #MEAction #Canada #Vancouver #genderbias #medicalbias #healthcare #humanrights #longcovid #genetics #bcpoli
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    9 mins
  • THE STINK

    THE STINK
    Oct 26 2024
    I explain what I mean by THE STINK and how it's dramatically worsening my health conditions not just by not letting me rest but by triggering multiple immune responses and creating / amplifying lung issues as well as keeping the eye swollen(you'll see an episode about that extreme histamine response to an immune vulnerability in August podcast episodes) which means we're not able to do the hyperbaric properly, which on top of the energy drain of the stink means it's stealing from that rapidly reducing energy envelope. Sometimes I feel like a sitcom episode of the definition of *can't win for losing*. so ridiculous. it would be funny except for the fact that the stakes couldn't be higher Gfm https://gofund.me/cff39173
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    22 mins
  • Devastating News vs Arm Floaties (Friendsgiving?)

    Devastating News vs Arm Floaties (Friendsgiving?)
    Oct 7 2024
    Some Devastating News vs Arm Floaties (Friendsgiving?). I'm feeling it so bad I don't even know how to write a description. but I am still going to fight just struggling for arm floaties (a talk about that last episode). it makes it feel kind of futile so I guess I am having the hard news eat my brain a bit today Gfm https://gofund.me/cff39173 Last news article was from RICHOCHET https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty #MyalgicEncephalomyelitis #COVID19 #projectforawesome #longcovid #healthcare #nerdfighters #britishcolumbia #canpoli #disabilityadvocate #MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disabilityinclusion #disabilitysupport #pwd #pwdassistance #derb #immunedeficiency #Christmasmagic #Christmas #christmasmiracle #philanthropy #Canada #Canadian #Vancouver #genderbias #medicalbias #healthcare #MedicalMeToo #humanrights #HUMANRIGHTSTRIBUNAL #humanrightsforall #mydisabledlifeisworthy #epsteinbarrvirus #PostViral #Friendsgiving
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    9 mins
  • Arm Floaties

    Arm Floaties
    Sep 25 2024
    I'm having a hard time keeping my head above water so I'm this ep I talk about Arm floaties. Here's the text I talk about re what's the what with seem floaties https://www.tumblr.com/momentsinreading/701215724949094400/and-i-dont-think-anybody-should-feel-bad-if-they?source=share and here's the YouTube of Taylor Tomlinson talking about it. it's pretty funny. https://youtu.be/xuue-s8qM8w?si=FL0V1XxCw-ND2oy3 Ebv inserting itself the b cell Twitter thread https://x.com/BrainInflCollab/status/1831998355104289219?t=XniSFkLPxNatDtGx4P0Rzg&s=09 Ricochet article I mention https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Gfm https://gofund.me/cff39173
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    57 mins
  • There was an old lady who swallowed a fly AKA The perils of lack of supports

    There was an old lady who swallowed a fly AKA The perils of lack of supports
    Aug 31 2024
    In this episode I talk about a recent eye infection that is very much living in the land of the song *THERE WAS AN OLD LADY WHO SWALLOWED A FLY* aka lack of supports creating a domino effect of problems for some reason the update to the Spotify for a podcasters app is not letting me add the photo I spoke of in the episode to this episode but you can see the photo of me doing my impression of a b-movie creature about to chase the villagers through the streets(AKA after the ER and before the antibiotics) on the latest update of the GoFundMe -the link is below Here is that blurb I spoke about in the episode that my advocate helped me write that it makes sharing what's happening to me easier for you Madeline is still valiantly struggling for her life and needs your help to get her to live long enough for a currently confidential in-development advocacy initiative to launch, tentatively spring 2025. Ways to help: -Share the gofundme - https://www.gofundme.com/f/MadelinesMiracle -Donate to the gofundme -Let Liza or Madeline know of any media sources or social media advocates that would be willing to tell her situation's new developments: that neither a human rights tribunal or supreme court Charter Challenge is possible for lack of supports to people with disabilities and/or no category of coverage for her disease, myalgic encephalomyelitis (ME)/Long-Viral this information was given to Madeline by multiple human rights lawyers and the BC Ombudsperson who have told her that all these issues are considered political, thus meaning no recourse is available For your reference and verification of her situation, here is a link to the twitter thread that includes the article by Ricochet Media and can be shared on instagram and facebook: https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19
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    22 mins
  • Constituency Appt + GENETIC testing in process

    Constituency Appt + GENETIC testing in process
    Aug 15 2024
    In this episode I speak about today's provincial constituency appointment and a genetics test that is processing. I was very grateful that friend helped me get it AKA paid for it and I'm hoping it will yield some results that will in turn yield some supports from within the British Columbia healthcare system. It's a hail Mary but at the time that the special came up on this full genome testing I was so close to running out of money that I thought if it doesn't come back before I run out of money at the very least maybe it's helps other people after I'm dead. It's so hard when things get that dark. But I'm still here! Thanks to GoFundMe donors and to some help from a friend this summer. The in the episode I talked about a myalgic encephalomyelitis death in the UK via starvation due to lack of medical intervention when her myalgic encephalomyelitis impeded her ability to digest food that went through a coroner's inquest. Maeve Boothby O’Neill After the coroner's inquest https://www.theguardian.com/uk-news/article/2024/aug/09/devon-woman-died-from-malnutrition-due-to-severe-me-coroner-concludes?utm_term=Autofeed&CMP=twt_gu&utm_medium&utm_source=Twitter#Echobox=1723221888 Right after her death https://www.theguardian.com/society/article/2024/aug/10/me-patients-maeve-boothby-o-neill-inquest I also speak about a YouTube episode I did entitled *I'm afraid* https://youtu.be/gdPfr-fCfGo?si=QHHZKMLJH81Kwm_I Since I currently run out of money the end of September Here is the GoFundMe link. If you're able to share it or the podcast link please do. Every little bit helps. Little things are big things!
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    17 mins
  • Queen Of The Cranky Arses

    Queen Of The Cranky Arses
    Jun 26 2024
    A snapshot of the difficulties of disability bias, disease bias, gender bias in a day-to-day out in the world kind of a way. Plus a little about the ombudsman. I'll do a whole episode about that at some point. I'm not sure if you really be able to see it but it took a screenshot of a thank you letter I sent out to gfm donators. It really sums up that prospective I talk about in the podcast, the counterweight of gratitude and purpose. I'm not sure if you'll be able to see it well so maybe in the next GoFundMe update I'll post it there as well Gfm https://gofund.me/cff39173
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    27 mins