• Episode 5: Ehlers-Danlos Syndrome, Nthabeleng Ramoeli story

  • Nov 12 2021
  • Length: 27 mins
  • Podcast

Episode 5: Ehlers-Danlos Syndrome, Nthabeleng Ramoeli story

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  • Summary

  • Ehlers-Danlos Syndrome is a genetic connective tissue disorder.  Symptoms may be noticeable as early as after birth or during early childhood.  These disorders usually occur due to a gene mutation resulting in defects in the processing or structure of collagen.  Our friend Nthabeleng Ramoeli, CEO of RARE Disease Lesotho association from Africa joins us to share her story with EDS.  

    https://www.facebook.com/RDLAngo/

    #raredisease #Ehlers-DanlosSyndrome #invisibleme #podcast
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