• #21 - Patti Demuri, Rare Disease Patient Advocate

  • Jun 21 2022
  • Length: 14 mins
  • Podcast

#21 - Patti Demuri, Rare Disease Patient Advocate

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  • Summary

  • In this episode our guest is Patti Demuri, a Rare Disease Patient Advocate & Educator.


    We’ll be discussing:

    • Demuri's background and her path to becoming a Rare Disease Patient Advocate
    • What makes rare disease patients unique in how they interact with healthcare & clinicians.
    • The concept of medical trauma
    • How Telehealth can benefit rare disease patients


    Links to Check Out:

    LinkedIn: https://www.linkedin.com/in/pattidemuri/

    Links to Check Out for Sam:

    Website: https://www.telehealtheasy.com

    Twitter https://twitter.com/samiamlip

    LinkedIn: https://www.linkedin.com/in/samlippolis

    Clubhouse: https://www.joinclubhouse.com/@samiamlip
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