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Everything No One Tells You About Parenting a Disabled Child
- Your Guide to the Essential Systems, Services, and Supports
- Narrated by: Kelley Coleman
- Length: 8 hrs and 25 mins
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Publisher's summary
The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver.
For parents of disabled children, navigating the systems, services, and supports is a daunting and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child’s success. Over and over, parents are being asked to reinvent the exact same wheels.
According to the CDC, “Every 4 ½ minutes a baby is born with a birth defect in the United States.” That’s 1 in 33. There’s no handbook for how to do this. Until now.
Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you.
Critic reviews
“When your child receives a diagnosis of disability, most parents feel overwhelmed and confused about how to handle things. In her new book, Everything No One Tells You About Parenting a Disabled Child, Kelley Coleman breaks it down, explaining everything you need to know in an accessible way. If you don't yet have a best friend or family member who has travelled this path and can advise you, her counsel will be invaluable.”—Kelly Fradin, MD, Director of Pediatrics at the Atria Institute in New York City, and author of Advanced Parenting
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Story
The ancient Toltecs believed that life, as we perceive it, is a dream. We each live in our own personal dream, and these come together to form the dream of the planet, or the world in which we live. Problems arise when our perception of the dream becomes clouded with negativity, drama, and judgment (of ourselves and others), because it's in these moments of suffering that we have forgotten that we are the architects of our own reality and we have the power to change our dream if we choose.
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listen.. .then listen again
- By Casiano on 12-22-16
What listeners say about Everything No One Tells You About Parenting a Disabled Child
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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Story
- Marilia Geroti
- 03-26-24
Every caregiver must read!
Easy to read, light, funny a must read for everyone that takes care of a disabled child/person.
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