In this episode, Tahnee is joined by Carly Steel, an Educational Consultant, who works closely with parents of neurodivergent children to enhance their child’s wellbeing, reduce anxiety, and promote family harmony. She is also the author of Consulting Autistic Young People on Their Personal Happiness, published in the Good Autism Practice journal.

In honor of Neurodiversity Celebration Week, today we explore the world of dyslexia—a prevalent learning difference that influences how individuals read, write, and process language. Dyslexia is much more than simply reversing letters; It brings unique challenges that can affect everything from academic achievement to self-esteem, but it is also a condition filled with strengths, creativity, and untapped potential. We’ll explore what dyslexia is, how it manifests, and why understanding it is key to supporting those who live with it. Join us as we unpack the myths and truths about dyslexia and highlight the importance of awareness and tailored support.

https://www.nessy.com/en-gb Free educational resources

https://www.neurodiversityweek.com/powerpoint-presentations Powerpoint presentations to look at with your children.

https://www.ipsea.org.uk/ - A leading charity to help you navigate the SEND system.

https://www.bdadyslexia.org.uk/ British Dyslexia Association

Life can be incredibly demanding, particularly for parents of children with Special Educational Needs and Disabilities (SEND), who must balance numerous appointments and therapies. It often feels like we’re managing a variety of responsibilities at once, but it’s important to remember that it’s okay to let some things go in order to focus on becoming the best version of ourselves. In this episode, Tahnee speaks with Kelly Kearley, a SEND mother who transitioned from a career in event management in London to becoming a psychotherapeutic counsellor. Kelly founded Mind Over Matter Therapy to offer support, give back, and help others heal from similar experiences. Having walked in the shoes of others truly enhances her ability to offer meaningful guidance.

My website: www.mindovermattertherapy.co.uk

PTEN UK and Ireland Patient group: www.ptenuki.org

Positively Rare book: https://amzn.eu/d/hf9Irx4

In this episode today, Tahnee talks with Gabby Zeppieri, the only adult in the US to be diagnosed with Neutral Lipid Storage Disease Myopathy NLSD-M, a rare genetic condition, where fats (lipids) are stored abnormally in organs and tissues throughout the body. The accumulation of fats in muscle tissue leads to muscle weakness (myopathy).

One of the reasons why such a small number of patients have been identified is un-awareness or less information of the disease.

https://www.gabbyswonderfulworld.org/

With the half term holidays in full swing, Tahnee takes some time off to become full time chef, taxi driver, bottom wiper, kids entertainer, cleaner and story teller. In this episode, we meet Isaac (9) and Reeva (4), who both wanted to be a part of the show. What's it like to have a sibling with a disability? and how well do they know him? Let's compare answers!

Landree Gail, a 7 year old girl from Oklahoma, was diagnosed at the age of 4 with a rare mutation form of Angelman Syndrome. Seizures, disruptive sleep patterns and short attention span are just a few signs and symptoms of this condition. Landree’s mother, April, shares her story with us today.

https://cureangelman.org.uk/

https://www.angelman.org/what-is-as/

https://www.instagram.com/colinfarrellfoundation/

https://www.instagram.com/aprilmchesser/

In 2021, Kim and Keith Firmin’s world was turned upside down after they were told during pregnancy that their unborn son had a complex heart - double inlet left ventricle (only 3 out of 4 heart chambers work) and pulmonary stenosis (heart valve disease). At just 9 days old, medical professionals noticed that Leo also had a type 3 laryngeal (Airway) cleft – which had to be surgically repaired 3 times. At 3 weeks old he had tracheostomy surgery. Today, his mother Kim, shares her story with Tahnee.

In this week's episode, Glenn Wilson, a pastor and creator of the Advocate of Hope on TikTok, which is dedicated to supporting parents, especially parents of children with special educational needs and disabilities (SEND) joins Tahnee on the sofa. As a parent of an autistic child, Glenn understands the unique challenges and joys this journey brings. His mission is to encourage and uplift parents, helping them find strength, community, and hope in the midst of the struggles they face on a daily basis.

TikTok: @advocateofhope

Insta: glennadvocateofhope

https://www.kids.org.uk/sendiass-home/

https://www.autism.org.uk/

https://www.uniqueways.org.uk/

One question Tahnee has been asked since starting this podcast is, "Who is Max? Tell us more!" Today we get to find out more about Max, as Tahnee shares her story with us.

https://www.kabukiuk.org.uk/

https://www.allthingskabuki.org/

https://www.kabukisyndromefoundation.org/