• Season II Episode 2: A Strong & Rare mama into Civic Action

  • Oct 16 2022
  • Duración: 32 m
  • Podcast

Season II Episode 2: A Strong & Rare mama into Civic Action

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  • Resumen

  • Feauturing Cristina Rosa Vargas, Strong & Rare Mama, Paralegal, and Award winner of the Sonofi 2022 torch awards. She has been featured in Rare Revolution magazine and had a pending article with Upstate medical. She is a mama into civic action as she spreads awareness of CLN2 disease. She is working on a petition to support FDA-approved medication for her son's diagnosis. As she continues to be a strong RDLA advocate she is striving to become a lawyer to support the Rare Disease Community.

    Show highlights:

    • Her Son's Journey with CLN2 and how she took steps to be a voice for her son and many other families
    • Her impact award recognition and her dedication to continuing advocating
    • Purpose in life as a parent and professional

    Learn more about the work Cristina is doing by visiting the following links

    • Link to live Sanofi watch party: Youtube Video,
    • Link to campaign: Here, Link to FDA citizen petition docket,
    • Featured on Rare Revolution magazine

    To stay connected, visit me on Instagram (@Strongandrareparenting), and/or send me an email at info. strongeandrareparents.com

    Support this Podcast: https://anchor.fm/strongandrareparentin
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