• Rare Disease Awareness Month - Gabby's Story

  • Feb 26 2025
  • Duración: 43 m
  • Podcast

Rare Disease Awareness Month - Gabby's Story

Escúchala gratis

Ver detalles del espectáculo

  • Resumen

  • In this episode today, Tahnee talks with Gabby Zeppieri, the only adult in the US to be diagnosed with Neutral Lipid Storage Disease Myopathy NLSD-M, a rare genetic condition, where fats (lipids) are stored abnormally in organs and tissues throughout the body. The accumulation of fats in muscle tissue leads to muscle weakness (myopathy).

    One of the reasons why such a small number of patients have been identified is un-awareness or less information of the disease.

    https://www.gabbyswonderfulworld.org/
    Más Menos
Más Menos

Lo que los oyentes dicen sobre Rare Disease Awareness Month - Gabby's Story

Calificaciones medias de los clientes

Reseñas - Selecciona las pestañas a continuación para cambiar el origen de las reseñas.

Reseñas de Audible.com

Opiniones de Amazon
No hay comentarios disponibles