MyFSHD

De: Peter L Jones PhD
Escúchala gratis

  • Resumen

  • MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
    Peter L Jones, PhD
    Más Menos
Economía Gestión Gestión y Liderazgo
Más Menos
Episodios
  • Brad, our angry Dad with your questions (pt 2)

    Brad, our angry Dad with your questions (pt 2)
    Apr 3 2025

    "Never go in against a Sicilian when death is on the line!" We have both survived so far and are back with part 2 of your Reddit questions on FSHD.
    Más Menos
    1 h y 5 m
  • Brad, our angry Dad is back with your questions (Pt 1)

    Brad, our angry Dad is back with your questions (Pt 1)
    Mar 25 2025

    "The battle of wits has begun. It ends when you decide and we both drink - and find out who is right, and who is dead." Today Brad, our angry dad, brings a list of your FSHD Reddit questions looking for answers.

    Más Menos
    1 h y 9 m
  • The science and the foundational funding leading to the current technologies in FSHD clinical trials.

    The science and the foundational funding leading to the current technologies in FSHD clinical trials.
    Mar 15 2025

    "The most valuable commodity I know of is information." Today we discuss current clinical trials in FSHD and the foundational science behind the technology. While NIH has funded much of the foundational science that todays therapeutic approaches are built upon, it is the private individual and foundation support from those with vested interests in a rare disease that drive industry investment that gets the therapies over the line and into the clinic and ultimately to patients.

    Más Menos
    1 h y 49 m

Lo que los oyentes dicen sobre MyFSHD

Calificaciones medias de los clientes

Reseñas - Selecciona las pestañas a continuación para cambiar el origen de las reseñas.

Reseñas de Audible.com

Opiniones de Amazon
No hay comentarios disponibles