Last month, the US House of Representatives passed a budget reconciliation bill that proposes cutting over a trillion dollars in Federal health care spending. The program that would see the largest cuts is Medicaid, which provides health insurance to people with low income and people with disabilities. The Congressional Budget Office estimates that the bill, if passed into law, would cut over 800 billion dollars from Medicaid alone, resulting in nearly 11 million Americans losing Medicaid coverage. The bill also proposes cuts to the Affordable Care Act, SNAP, and to Medicare, which provides coverage to more than 61 million adults age 65 or older and almost 7 million people with disabilities under the age of 65.

Meanwhile, here in California, disability rights advocates have been flocking to Sacramento in recent weeks to push back on Governor Gavin Newsom’s proposed state budget, which includes massive cuts to the In-Home Supportive Services, or IHSS, program, as well as cuts to services for people with developmental disabilities. IHSS provides in-home care for people with disabilities and older adults in California.

For more on these proposed cuts at the state and Federal level, we are joined by two guests. Claudia Center is the Legal Director at the Disability Rights Education and Defense Fund, or DREDF, Prior to her time at DREDF, Claudia was Senior Staff Attorney in the Disability Rights Program at the ACLU.

We’re also joined by Ted Jackson, the Director of Public Policy and Community Engagement at the Marin Center for Independent Living. Ted is also the Statewide Director of the Disability Organizing Network here in California.

Today, we’re joined by Dr. Xenia Barnes. After a 20 year career in education, Xenia turned her attention to social justice work and trauma research, with a particular focus on how gun violence impacts individuals and communities. Then, in 2021, she was diagnosed with pulmonary fibrosis, a lung disease that makes it difficult for the body to absorb oxygen from the air. Her essay “The Invisible Battle: Navigating the Minefield of Workplace Accommodation” was included in the recently published book, “Triumph in the Trenches: Navigating Success for Black Professionals.”

Xenia Barnes is a researcher, a public speaker, and a life coach. She is the author of two books on navigating trauma: “Grieving to Heal: The Shadow Boarding Experience” and “The Recondition: A Guide to Loving Yourself Through the Trauma.” She has completed one PhD degree in Theology and is finishing up a second PhD degree in Advanced Human Behavior.

April is Autism Acceptance Month, and today we’re honoring that by spending the show talking about autism and specifically late-diagnosed autism. Autism is a broad umbrella for describing how some people think, feel, and act differently from what is considered typical or normal. We did a show in January on neurodivergence. Autism is a form of neurodivergence, and autism is a disability.

Autism manifests in each person differently, but common experiences of autistic people are finding socializing challenging and/or tiring, getting overwhelmed in loud or busy spaces, having intense interests that you keep coming back to, and preferring order and routine. Some people use repeated motions or actions to calm down their nervous system and/or express joy and happiness. Some autistic people hide - or mask - their emotions in order to fit in socially. This can sometimes lead to mental illness.

For more on all of this, we are joined by Kristen Hovet, the founder and creator of The Other Autism podcast. Kristen was diagnosed with autism in her 30s. Before that, she was labeled shy, gifted, intense, sensitive, reserved, but never autistic. This, unfortunately, is a common experience, especially for women and those assigned female at birth. We’ll explore why this is and what factors lead to this underdiagnosis later in the show.

Kristen Hovet has a Master’s Degree in Health Studies from Athabasca University in Alberta, Canada. She’s currently a Research Communications Specialist at the British Columbia Children's Hospital Research Institute in Vancouver.