Surviving and Thriving with an Invisible Chronic Illness
How to Stay Sane and Live One Step Ahead of Your Symptoms
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Narrado por:
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Lori Prince
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De:
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Ilana Jacqueline
Acerca de esta escucha
Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness.
Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way.
Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see - such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MS).
This book will tell you everything you need to know about living with a complicated, invisible condition - from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You'll also learn to navigate judg-y or skeptical relatives and strangers and - most importantly - manage your medical care.
Suffering from a chronic illness doesn't mean you can't live an active, engaged life. This book will show you how.
©2018 Ilana Jacqueline (P)2018 Vibrance PressLos oyentes también disfrutaron...
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When caring for someone with dementia, your own mental stability can be the single most critical factor in your loved one’s quality of life. The Caregiver's Guide to Dementia brings practical and comprehensive guidance to understanding the illness, caring for someone, and caring for yourself. From understanding common behavioral and mood changes to making financial decisions, this book contains bulleted lists of actions you can take to improve your health and your caregiving.
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5 out of 5 stars
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As a RN myself I HIGHLY HIGHLY recommend
- De Amazon Customer en 01-13-21
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A Bittersweet Season
- Caring for Our Aging Parents - And Ourselves
- De: Jane Gross
- Narrado por: Kate Reading
- Duración: 15 h y 35 m
- Versión completa
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General4.5 out of 5 stars 82
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Narración:4.5 out of 5 stars 72
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Historia4.5 out of 5 stars 74
In telling the intimate story of caring for her aged and ailing mother, Jane Gross offers indispensable, and often surprising, advice for the rapidly increasing number of adult children responsible for aging parents. Gross deftly weaves the specifics of her personal experience with a comprehensive resource for effectively managing the lives of one's own parents while keeping sanity and strength intact.
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5 out of 5 stars
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Exceptional, thought-provoking, liberating!
- De Anne en 08-10-11
De: Jane Gross
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Women Who Think Too Much
- How to Break Free of Overthinking and Reclaim Your Life
- De: Susan Nolen-Hoeksema
- Narrado por: Sheryl Bernstein
- Duración: 2 h y 58 m
- Versión resumida
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General4 out of 5 stars 533
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Narración:4 out of 5 stars 441
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Historia4 out of 5 stars 444
It's not a surprise that our fast-paced, overly analytical culture is pushing people - especially women - to spend countless hours thinking about negative ideas, feelings, and experiences. Renowned psychologist Dr. Susan Nolen-Hoeksema calls this "overthinking". Her groundbreaking research shows that an increasing number of women - more than half of those in her extensive study - are doing it too much and too often, hindering their ability to lead a satisfying life.
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1 out of 5 stars
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Generic tools for overcoming overthinking
- De letlet en 01-09-19
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Alzheimer’s Through the Stages: A Caregiver’s Guide
- What to Expect, What to Say,What to Do
- De: Mary Moller MSW CAS
- Narrado por: Heidi Rew
- Duración: 5 h y 20 m
- Versión completa
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General4.5 out of 5 stars 88
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Narración:4.5 out of 5 stars 76
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Historia4.5 out of 5 stars 76
Alzheimers books should help everyone involved through this incredibly difficult time. That’s why Alzheimer’s Through the Stages shows you what you can do for your loved one - and yourself - every step of the way. This book’s detailed descriptions of all seven stages of the disease are both helpful and comforting. With each section divided into three parts - what to expect, what to say, and what to do - this is one of the easiest to use Alzheimers books for caregivers.
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5 out of 5 stars
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Peaceful narration of wonderfully helpful book
- De Too_much_shopping en 02-10-23
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The Spectrum of Hope
- An Optimistic and New Approach to Alzheimer's Disease and Other Dementias
- De: Gayatri Devi MD
- Narrado por: Wendy Tremont King
- Duración: 12 h y 41 m
- Versión completa
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General4.5 out of 5 stars 35
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Narración:4.5 out of 5 stars 33
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Historia4.5 out of 5 stars 33
Imagine finding a glimmer of good news in a diagnosis of Alzheimer's. And imagine how that would change the outlook of the five million Americans who suffer from Alzheimer's disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who's been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer's by defining it as a spectrum disorder - like autism, Alzheimer's is a disease that affects different people differently.
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5 out of 5 stars
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Aging with Grace
- De Lisa F en 05-19-21
De: Gayatri Devi MD
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The New Normal
- A Roadmap to Resilience in the Pandemic Era
- De: Jennifer Ashton
- Narrado por: Jennifer Ashton
- Duración: 8 h y 42 m
- Versión completa
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General4.5 out of 5 stars 27
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Narración:4.5 out of 5 stars 26
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Historia4.5 out of 5 stars 26
From Dr. Jennifer Ashton comes a doctor’s guide to finding resilience in the time of COVID, while staying safe and sane in a rapidly changing world. The New Normal is a holistic road map through the ongoing struggles of the pandemic, providing the guidance you need to navigate this unsettling time and take charge of your future well-being.
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5 out of 5 stars
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Live Each Day Alive
- De Barbara A. Badalewski en 06-02-23
De: Jennifer Ashton
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The Center Cannot Hold
- De: Elyn R. Saks
- Narrado por: Alma Cuervo
- Duración: 12 h y 10 m
- Versión completa
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General4.5 out of 5 stars 1,510
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Narración:4.5 out of 5 stars 1,213
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Historia5 out of 5 stars 1,219
Professor of psychiatry Elyn R. Saks writes about her struggle with schizophrenia in this unflinching account of her mental illness. In The Center Cannot Hold, Saks draws readers into a nightmare world of medications, a misguided health-care system, and social stigmas. But she would not be defeated. With a strength and force of will that most can only imagine, Saks reclaimed her life and went on to achieve great success.
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5 out of 5 stars
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Schizophrenia Inside Out
- De Pamela Harvey en 07-23-09
De: Elyn R. Saks
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Constructive Living
- De: David Reynolds
- Narrado por: David Reynolds
- Duración: 4 h y 23 m
- Versión completa
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General5 out of 5 stars 88
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Narración:4.5 out of 5 stars 71
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Historia5 out of 5 stars 70
Constructive Living combines two of the most popular forms of therapy in Japan into one profoundly effective approach that will not only enhance your productivity but also bring a flexible, responsive mind - a Zenlike tranquility - a to your personal and professional lives. Discover the life-changing potential of Morita therapy (based on taking right action in the moment) and Naikan therapy (a way to cultivate your awareness of how the world supports you) in three information-packed sessions.
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5 out of 5 stars
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Insightfully Practical and Realistic
- De Paul Fears en 02-08-16
De: David Reynolds
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The Grown-Up's Guide to Teenage Humans
- How to Decode Their Behavior, Develop Unshakable Trust, and Raise a Respectable Adult
- De: Josh Shipp
- Narrado por: Roger Wayne
- Duración: 7 h y 40 m
- Versión completa
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General4.5 out of 5 stars 165
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Narración:4.5 out of 5 stars 142
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Historia4.5 out of 5 stars 142
Written in Shipp's playfully authoritative, no-nonsense voice, The Grown-Up's Guide to Teenage Humans tells his story and unpacks practical strategies that can make a difference. Ultimately, it's not about shortcuts or magic words - as Shipp reminds us, it's about investing in kids and giving them the love, time, and support they need to thrive. And that means every kid is one caring adult away from being a success story.
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5 out of 5 stars
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Read it....then read it again!
- De R. Eichelberger en 11-07-17
De: Josh Shipp
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Changing the Way We Die
- Compassionate End-of-Life Care and the Hospice Movement
- De: Sheila Himmel, Fran Smith
- Narrado por: Coleen Marlo
- Duración: 6 h y 49 m
- Versión completa
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General4.5 out of 5 stars 72
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Narración:4.5 out of 5 stars 62
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Historia4.5 out of 5 stars 62
There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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3 out of 5 stars
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Sadly, not very engaging.
- De Debra S. Long en 06-16-18
De: Sheila Himmel, y otros
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Differently Wired
- Raising an Exceptional Child in a Conventional World
- De: Deborah Reber
- Narrado por: Deborah Reber
- Duración: 8 h y 19 m
- Versión completa
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General5 out of 5 stars 310
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Narración:5 out of 5 stars 272
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Historia4.5 out of 5 stars 270
Today millions of kids are stuck in a world that doesn't respect, support, or embrace who they really are - these are what Deborah Reber is calling the “differently wired” kids, the one in five children with ADHD, dyslexia, Asperger’s, and other neurodifferences. Their challenges are many. But now there’s hope. Written by Deborah Reber, a best-selling author and mother in the midst of an eye-opening journey with her son who is twice exceptional (he has ADHD, Asperger’s, and is highly gifted), Differently Wired is a how-to, a manifesto, a book of wise advice, and more.
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3 out of 5 stars
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very well thought out but not for everyone
- De Trudy Owens en 01-01-19
De: Deborah Reber
-
Super You
- Release Your Inner Superhero
- De: Emily Gordon
- Narrado por: Emily Gordon
- Duración: 7 h y 37 m
- Versión completa
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General4 out of 5 stars 334
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Narración:4.5 out of 5 stars 303
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Historia4 out of 5 stars 304
Superheroes don't start from glorious beginnings. Their origins are almost always marked by traumatic events that leave them helpless and scared. Batman witnessed his parents' murder. Superman was sent away from his dying planet with no one to guide him as he grew up. Orphaned Catwoman was forced to steal food to survive on the streets of Gotham. What makes these superheroes super is their determination to not be defined by helplessness. They embrace their origins, their flaws, and their mistakes and strive every day to become the best versions of themselves.
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5 out of 5 stars
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A wonderful book filled with empathy and humanity.
- De Vincent en 10-06-15
De: Emily Gordon
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For women, the possibility of experiencing medical gaslighting—having a healthcare provider dismiss or ignore their concerns without considering appropriate testing or creating a treatment plan—has always been a very real and present danger, with consequences ranging from self-doubt and emotional stress to delayed diagnosis and death. And being a woman of color, transgender, or disabled only compounds the risk. In Medical Gaslighting, you’ll equip yourself with the tools you need to be fully heard at every step of the process.
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Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help listeners make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness.
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For those with disability and not
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POTS: What It Really Is & Why It Happens
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Postural orthostatic tachycardia syndrome (POTS) is currently defined as a "syndrome", a collection of symptoms for which the root cause has not yet been identified. This book aims to rectify this by arguing the case for POTS being considered a form of neurological injury to the limbic system following an antecedent trauma, such as a viral illness, pregnancy, surgery, or psychological trauma (or a combination).
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1 out of 5 stars
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When Chronic Pain & Illness Take Everything Away
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Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?
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4 out of 5 stars
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When chronic pain and illness take everything away
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What Doesn't Kill You
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A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.
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5 out of 5 stars
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Excellent book
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The Invisible Kingdom
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A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.
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5 out of 5 stars
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Humbling. Heart-Opening. Disturbing.
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Medical Gaslighting
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General4 out of 5 stars 12
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For women, the possibility of experiencing medical gaslighting—having a healthcare provider dismiss or ignore their concerns without considering appropriate testing or creating a treatment plan—has always been a very real and present danger, with consequences ranging from self-doubt and emotional stress to delayed diagnosis and death. And being a woman of color, transgender, or disabled only compounds the risk. In Medical Gaslighting, you’ll equip yourself with the tools you need to be fully heard at every step of the process.
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5 out of 5 stars
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This should be required reading
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Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help listeners make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness.
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5 out of 5 stars
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For those with disability and not
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Postural orthostatic tachycardia syndrome (POTS) is currently defined as a "syndrome", a collection of symptoms for which the root cause has not yet been identified. This book aims to rectify this by arguing the case for POTS being considered a form of neurological injury to the limbic system following an antecedent trauma, such as a viral illness, pregnancy, surgery, or psychological trauma (or a combination).
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1 out of 5 stars
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- De Ciera Mathias en 03-26-21
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When Chronic Pain & Illness Take Everything Away
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Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?
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5 out of 5 stars
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Excellent book
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The Invisible Kingdom
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A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.
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Humbling. Heart-Opening. Disturbing.
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How to Be Sick (Second Edition)
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General5 out of 5 stars 80
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Narración:4.5 out of 5 stars 68
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Historia4.5 out of 5 stars 67
In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations - a life that was vastly different from the one they’d thought they’d have together - Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy.
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5 out of 5 stars
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Essential read for anyone sick/in pain
- De MJ en 10-01-19
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Fibromyalgia for Dummies, 2nd Edition
- De: Roland Staud MD, Christine Adamec - With
- Narrado por: Randye Kaye
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General4 out of 5 stars 8
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Narración:4.5 out of 5 stars 8
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Historia4 out of 5 stars 8
The pain you suffer from fibromyalgia syndrome (FMS) is not in your imagination. FMS is a real medical problem that can be as debilitating and demoralizing as it is mysterious. Fibromyalgia for Dummies, 2nd Edition, brings you the latest scientific findings on the symptoms and causes of this disease and guides you toward proven, practical steps you can take to reduce or eliminate FMS-related pain.
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5 out of 5 stars
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Excellent information and narration-buy it!
- De Cyndy Bakke en 08-12-20
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A Guided Meditation to Help with Fibromyalgia & Chronic Fatigue
- De: Belleruth Naparstek
- Narrado por: Belleruth Naparstek
- Duración: 47 m
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General5 out of 5 stars 5
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Narración:5 out of 5 stars 5
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This guided meditation for fibromyalgia and chronic fatigue treatment was made in collaboration with physicians, specialists and patients using, the latest research and cutting edge information on causes and treatment for fibromyalgia (FM) and chronic fatigue (CFS). It is designed to help alleviate symptoms, promote healing and provide emotional relief. Separate tracks are expertly and holistically crafted to ease discomfort, reduce fatigue, enhance restful sleep, heighten energy and maintain emotional balance naturally.
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5 out of 5 stars
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Wonderful healing aid
- De mcat35 en 09-22-22
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Tired Sick
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- De: Alex Lonnquist
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General4 out of 5 stars 12
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Narración:3.5 out of 5 stars 10
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Historia4 out of 5 stars 10
If you have chronic fatigue syndrome (CFS), multiple chemical sensitivity (MCS), or fibromyalgia (FMS), you may have gone through the Western medicine runaround much like I did. Doctors do not have an answer for why you feel so tired or why you are so sensitive to your surroundings. Your blood tests look normal so the doctors tell you nothing is wrong.
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1 out of 5 stars
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Irresponsible and Inaccurate for ME/CFS
- De Denise Moreira en 05-30-24
De: Alex Lonnquist
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Postural Orthostatic Tachycardia Syndrome: A Beginner's Quick Start Guide for Women on Managing POTS Through Diet, With Sample Curated Recipes
- De: Mary Golanna
- Narrado por: Virtual Voice
- Duración: 42 m
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General0 out of 5 stars 0
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Narración:0 out of 5 stars 0
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Unlock the essentials of Postural Orthostatic Tachycardia Syndrome (POTS) with our informative beginner's guide. POTS is an autonomic nervous system disorder characterized by a rapid increase in heart rate and low blood pressure upon standing, also known as orthostasis. This condition is often referred to as postural orthostasis, orthostatic intolerance, or OI, highlighting its key symptoms of orthostatic intolerance and tachycardia. In simple terms, orthostasis involves a significant rise in heart rate during activities such as standing or physical exertion, compared to the heart's resting...
De: Mary Golanna
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The Mayo Clinic Guide to Fibromyalgia
- Strategies to Take Back Your Life
- De: Andy Abril M.D., Barbara K. Bruce PH.D. L.P.
- Narrado por: Eliza Foss
- Duración: 7 h y 24 m
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General4 out of 5 stars 53
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Narración:4.5 out of 5 stars 49
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Historia4 out of 5 stars 49
Drawing on decades of experience in treating fibromyalgia, Mayo Clinic Guide to Fibromyalgia offers research-supported, practical strategies that can help anyone with fibromyalgia live their best life now. From personal stories of people living with fibromyalgia to the compassionate expertise of its medical editors, this book seeks to first connect with people who have fibromyalgia in a way that they may not have experienced from loved ones and even doctors.
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2 out of 5 stars
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Not for anyone but the newbies to this disease
- De Just another Jo(anna) en 10-15-19
De: Andy Abril M.D., y otros
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Holding It All Together when You're Hypermobile
- Achieve a Better Life Experience with EDS, POTS, and Joint Instability
- De: Christie Cox
- Narrado por: Rebecca Winder
- Duración: 7 h y 16 m
- Versión completa
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General4 out of 5 stars 1
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Narración:3 out of 5 stars 1
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Historia4 out of 5 stars 1
This is not a false hope. You can turn pain into possibility with this life-changing book that can help everyone with elusive hypermobile Ehlers Danlos Syndrome (hEDS)–from those newly diagnosed to those who have suffered in silence for decades. Wherever you are on your journey navigating the complexities of chronic illness, you're not alone.
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4 out of 5 stars
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A Helpful Guide to Living with a Chronic Condition
- De Kristjan Larson en 08-28-23
De: Christie Cox
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Broken
- Living with EDS and Other Chronic Conditions
- De: Marcia Brock, Cassanda A Campbell
- Narrado por: Marcia Brock, Cassandra A Campbell
- Duración: 3 h y 43 m
- Versión completa
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General4 out of 5 stars 7
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Narración:4 out of 5 stars 7
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Historia4.5 out of 5 stars 7
Marcia Brock has lived with hEDS, Raynaud's syndrome, lupus and has survived cancer several times. Cassandra A Campbell has been living with hEDS and fibromyalgia. Together they deliver workshops for Ehlers-Danlos.org. Both authors deliver this audiobook.
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1 out of 5 stars
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We deserve better 🦓
- De Anonymous User en 07-22-24
De: Marcia Brock, y otros
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Chronic
- The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again
- De: Steven Phillips MD, Dana Parish, Kristin Loberg
- Narrado por: Teri Schnaubelt, Thomas Allen
- Duración: 10 h y 42 m
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General4.5 out of 5 stars 69
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Narración:4.5 out of 5 stars 56
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Historia4.5 out of 5 stars 56
In this timely book, Steven Phillips, MD, and his former patient, Sony singer-songwriter Dana Parish, reveal striking evidence that a broad range of common infections, from COVID-19 to Lyme and many others, cause a variety of autoimmune, psychiatric, and chronic conditions. Chronic explores the science behind what makes them difficult to diagnose and treat, debunks widely held beliefs by doctors and patients alike, and provides solutions that empower sufferers to reclaim their lives.
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5 out of 5 stars
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A must read book
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What Your Doctor May Not Tell You About Fibromyalgia
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General4 out of 5 stars 81
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Narración:4.5 out of 5 stars 63
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Historia4.5 out of 5 stars 61
Dr. R. Paul St. Amand is a renowned endocrinologist and has taught at UCLA for over 43 years. He is currently assistant clinical professor at the UCLA School of Medicine, where he has developed a remarkable treatment for a painful disease that affects millions of people.
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1 out of 5 stars
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Where's the science?
- De Wendi Fellner en 03-13-06
De: R. Paul St. Amand M.D., y otros
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Finding Joy with an Invisible Chronic Illness
- Proven Strategies for Discovering Happiness, Meaning, and Fulfillment
- De: Christopher Martin
- Narrado por: Gary J. Chambers
- Duración: 5 h y 13 m
- Versión completa
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General4 out of 5 stars 1
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Narración:4 out of 5 stars 1
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Historia4 out of 5 stars 1
Finding Joy presents a comprehensive, practical guide for living your best life with chronic illness. This psychology self-help book integrates personal and professional insights to give you tools for handling various aspects of living with a chronic illness. There is also a chapter specifically for the loved ones and caregivers of the chronically ill. While this book is designed for anyone with a chronic illness, the spiritual content early in the book suggests the value of sticking to your faith and offers several Bible references.
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Disability Visibility: First-Person Stories from the Twenty-First Century
- Unabridged Selections
- De: Alice Wong
- Narrado por: Alejandra Ospina, Alice Wong
- Duración: 8 h y 1 m
- Versión completa
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General4.5 out of 5 stars 320
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Narración:4.5 out of 5 stars 275
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Historia4.5 out of 5 stars 274
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
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4 out of 5 stars
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Missing stories
- De Adrianna A. en 11-19-20
De: Alice Wong
Lo que los oyentes dicen sobre Surviving and Thriving with an Invisible Chronic Illness
Con calificación alta para:
Reseñas - Selecciona las pestañas a continuación para cambiar el origen de las reseñas.
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Catherine Burns
- 07-08-18
LOVED THIS BOOK
Thank you so much for all your tools and encouragement!! I now feel empowered to fight for myself.
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esto le resultó útil a 6 personas
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Heather D
- 03-21-18
Great Reference Guide!
I wish I had this with me when I first became ill, it would have saved me alot of heartache and tears. Ilanas words resonated with me on many levels. I would recommend this book to anyone learning to walk in this life with an invisible illness. Whether you have yet to be diagnosed or a seasoned patient, this is great tool.
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esto le resultó útil a 9 personas
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Amazon Customer
- 05-01-24
So helpful & logical
As a 35 yr old woman, a mother, a wife, a nurse practitioner, I live with chronic pain due to hEDS and disruptive symptoms of dysautonomia. I’m at a crossroads of my condition and career and life where I needed some realistic advice but also some positive reassurance. Ilana Jacqueline nailed it for me! She even addressed how to approach the consideration of filing for disability; how she feels like she gets stares as a young adult using a handicap placard; or how acceptance is the biggest challenge. Thank you Ilana. I think I’ll probably even listen to this again!
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Hannah Crazyhawk
- 11-02-20
A Vital Book!
This is my most favorite book about chronic illnesses. I found out about it in the Facial Pain Foundation's quarterly magazine. I have Trigeminal Neuralgia and many other debilitating chronic illnesses. I feel so alone. I just started chemotherapy. This book really helped me feel more empowered and it brought me comfort in so much darkness.
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esto le resultó útil a 2 personas
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- vducky
- 06-22-19
A must listen for anyone with chronic illness!!
Loved this book. From the performance to the content. Very informative and motivational to take your life back or keep your life despite chronic illness. Will definitely listen to multiple times through out my chronic illness journey.
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esto le resultó útil a 5 personas
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Karen Austin
- 08-24-24
her perspective
I agree with what she is saying. She gave a lot of pearls of wisdom.
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Jake
- 02-28-21
such a practical and honest presentation
As hard as it is to write a book about a topic that is different for every single person, the author does a great job of sharing her experiences, how she's come to find acceptance, and shares practical tips on how you can do the same, regardless of your symptoms.
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esto le resultó útil a 1 persona
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Lani Paul
- 03-05-24
I learned a lot it made me stronger 
This book made me stronger, gave me the strength, and what I have learned, I would recommend this book to anyone with what it says, and invisible disease
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Total5 out of 5 stars
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Ejecución5 out of 5 stars
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Historia5 out of 5 stars
- Jobananamama
- 10-25-19
My absolute #1 go to.
My absolute #1 go to when I need to decompress, when anxiety is high. Everything she says, I can relate to.
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esto le resultó útil a 4 personas
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Total4 out of 5 stars
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Ejecución5 out of 5 stars
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Historia4 out of 5 stars
- laurie dahlstrom nahum
- 06-03-22
Chronic Illness
I have several autoimmune diseases. The biggest problem is Shortens Syndrome. none of the protocol medications have helped. in 4 years I have never had a day of relief. Each day is worse than the one before. I am 74 years old. This book did nothing for me. Been there done that.
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esto le resultó útil a 1 persona